Ottawa teenager Jonathan Pitre , who was known as the “butterfly boy,” because of a rare skin condition, has died. Pitre, 17, passed away Wednesday evening in a Minnesota hospital, according to TSN and the Ottawa Citizen . Pitre was born with epidermolysis bullosa (EB), a rare but debilitating condition that made his skin extremely fragile and prone to blistering. People with the condition are sometimes called “butterfly children” because their skin is as fragile as the insect’s wings. It affects between 3,000 and 5,000 Canadians. There’s no treatment for the disease and people with is rarely live beyond 30 years. In 2016, Pitre and his mother, Tina Boileau, traveled to Minnesota so he could undergo stem cell treatment — an experimental clinical trial that was said to be dangerous and painful, but also potentially life-saving. Since the treatment, he had b...
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