Ottawa’s ‘butterfly boy,’ Jonathan Pitre, dies at age 17

Ottawa teenager Jonathan Pitre, who was known as the “butterfly boy,” because of a rare skin condition, has died.Pitre, 17, passed away Wednesday evening in a Minnesota hospital, according to TSN and the Ottawa Citizen.

Pitre was born with epidermolysis bullosa (EB), a rare but debilitating condition that made his skin extremely fragile and prone to blistering. People with the condition are sometimes called “butterfly children” because their skin is as fragile as the insect’s wings.It affects between 3,000 and 5,000 Canadians.There’s no treatment for the disease and people with is rarely live beyond 30 years.

In 2016, Pitre and his mother, Tina Boileau, traveled to Minnesota so he could undergo stem cell treatment — an experimental clinical trial that was said to be dangerous and painful, but also potentially life-saving.Since the treatment, he had been in and out of the hospital.

But on Friday, Pitre was admitted back in the hospital due to a high fever, according to the Ottawa Citizen. Over the next few days, his blood pressure kept dropping and his condition deteriorated.

He was then moved to the intensive care unit and died Wednesday evening.

“He’s no longer suffering and that’s what he wanted,” Boileau told the Ottawa Citizen. “That’s what I wanted.”

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